Premature Indonesia Support Group in Health Communication: Efforts to Prevent Retinopathy of Prematurity in Indonesia
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Keywords:
Health communication, public health, retinopathy of prematurity, prematurity, child blindness, social support
Abstract
This study aimed to discuss the role of the Premature Indonesia support group in health communication as an effort to prevent retinopathy of prematurity (ROP) in Indonesia. ROP is an eye developmental disorder due to premature birth, which results in a child’s permanent blindness. The awareness about the risk of ROP is still very low so health communication efforts are currently necessary. This study was conducted using a qualitative research approach with in-depth interviews as the primary data. The secondary data were collected through literature study, observation, and researcher’s experience. The results showed that Premature Indonesia’s health communication efforts were carried out through several stages namely analyzing main problems, selecting credible and experienced educators, using social media as the main communication medium, and formulating and delivering explicit health information messages. Through these health communication efforts, the Premature Indonesia support group could increase health awareness and the risk of ROP in premature babies along with its prevention efforts.
Keywords: health communication, public health, retinopathy of prematurity, prematurity, child blindness, social support.
References
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Cassata, D. M. (1980). Health Communication Theory and Research: A Definitional Overview. Annals of the International Communication Association, 4(1), 583–589. https://doi.org/10.1080/23808985.1980.11923826
Chawanpaiboon, S., Vogel, J. P., Moller, A. B., Lumbiganon, P., Petzold, M., Hogan, D., Landoulsi, S., Jampathong, N., Kongwattanakul, K., Laopaiboon, M., Lewis, C., Rattanakanokchai, S., Teng, D. N., Thinkhamrop, J., Watananirun, K., Zhang, J., Zhou, W., & Gülmezoglu, A. M. (2019). Global, regional, and national estimates of levels of preterm birth in 2014: a systematic review and modelling analysis. The Lancet Global Health, 7(1), e37–e46. https://doi.org/10.1016/S2214-109X(18)30451-0
Clinic, M. (2021). Premature Birth (Vol. 148). https://www.mayoclinic.org/diseases-conditions/premature-birth/symptoms-causes/syc-20376730
Dewi, R., Tuhusula, R., & Rohsiswatmo, R. (2016). Skrining Retinopathy of Prematuritydi Rumah Sakit dengan Fasilitas Terbatas. Sari Pediatri, 14(3), 185. https://doi.org/10.14238/sp14.3.2012.185-90
Haslam, D. M., Tee, A., & Baker, S. (2017). The Use of Social Media as a Mechanism of Social Support in Parents. Journal of Child and Family Studies, 26(7), 2026–2037. https://doi.org/10.1007/s10826-017-0716-6
Katoch, D., & Dogra, M. (2018). The role of advocacy and communication in reducing ROP in India. Community Eye Health, 31(101), S32–S34. http://www.ncbi.nlm.nih.gov/pubmed/30275669%0Ahttp://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=PMC6157802
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Kemp, S. (2020). Digital 2020: Indonesia. Data Reportal. https://datareportal.com/reports/digital-2020-indonesia
Kinanti, R., Kassa, M., Vidyarini, T. N., & Monica, V. (2020). Pesan Komunikasi Kesehatan pada Posting Instagram Alodokter dan Halodoc. Jurnal E-Komunikasi, 8(2), 1–10.
Lynn-Sze, J. C., & Kamaruddin, A. (2021). Online Opinion Leaders in the Health Promotion Digital Era. Jurnal Komunikasi: Malaysian Journal of Communication, 37(4), 295–309. https://doi.org/10.17576/JKMJC-2021-3704-17
Malik, A., Khan, M. L., & Quan-Haase, A. (2021). Public health agencies outreach through Instagram during the COVID-19 pandemic: Crisis and Emergency Risk Communication perspective. International Journal of Disaster Risk Reduction, 61(May), 102346. https://doi.org/10.1016/j.ijdrr.2021.102346
Mariyana, R. (2018). Riwayat Prematur dengan Tumbuh Kembang Anak Usia Satu Tahun. Human Care Journal, 3(3), 183. https://doi.org/10.32883/hcj.v3i3.217
Miller-Ott, A. E., & Durham, W. T. (2011). The Role of Social Support in Young Women’s Communication About the Genital HPV Vaccine. Women’s Studies in Communication, 34(2), 183–201. https://doi.org/10.1080/07491409.2011.618239
Miyane, W. T., & Mansur, S. (2021). Health Communication Campaign of Clean and Healthy Living Behaviour (PHBS) in Covid-19 Pandemic Era. Jurnal Komunikasi: Malaysian Journal of Communication, 37(2), 305–322. https://doi.org/10.17576/JKMJC-2021-3702-19
Mulyana, D. (2008). Ilmu Komunikasi Suatu Pengantar. PT Remaja Rosdakarya.
Notoatmodjo, S. (2010). Promosi Kesehatan Teori & Aplikasi. PT. Rineka Cipta.
Nugroho, A. (2018). Mengenal Komunitas Premature Indonesia: Edukasi supaya Ortu Tak Cemas. Radar Kediri. https://radarkediri.jawapos.com/read/2018/09/23/96385/mengenal-komunitas-premature-indonesia
Paramasari, S. N., & Nugroho, A. (2021). Strategi Komunikasi Kesehatan dalam Upaya Membangun Partisipasi Publik pada Masa Pandemi Covid-19. JURNAL LENSA MUTIARA KOMUNIKASI, 5(1), 123–132. https://doi.org/10.51544/jlmk.v5i1.2036
Parsons, C. S. (2019). Hystersisters : messages of social support in an online health support group for women. Journal of Communication in Healthcare, 12(2), 121–133. https://doi.org/10.1080/17538068.2019.1612211
Patel, S., Shafer, A., Brown, J., Bulik, C., & Zucker, N. (2014). Parents of Children With Eating Disorders: Developing Theory-Based Health Communication Messages to Promote Caregiver Well-Being. Journal of Health Communication, 19(5), 593–608. https://doi.org/10.1080/10810730.2013.821559
Rahmadiana, M. (2012). Komunikasi Kesehatan : Sebuah Tinjauan*. Jurnal Psikogenesis, 1(1), 88–94.
Rahmawati, W. R. (2018). Penerimaan Masyarakat Terhadap Pesan Kesehatan Melalui Media Internet. Jurnal Komunikatif, 7(1), 95–105. https://doi.org/10.33508/jk.v7i1.1748
Rakhmaniar, A. (2021). Strategi Komunikasi Kesehatan Penanganan Covid-19. Linimasa: Jurnal Ilmu Komunikasi, 4(1), 10–30. https://doi.org/http://dx.doi.org/10.23969/linimasa.v4i1.3496
Rakhmat, J. (2018). Psikologi Komunikasi Edisi Revisi. PT. Remaja Rosdakarya.
Rasmi, L. (2021). Belum banyak dokter Indonesia yang bisa tangani kelainan mata anak prematur. Akurat. https://akurat.co/id-87277-read-belum-banyak-dokter-indonesia-yang-bisa-tangani-kelainan-mata-anak-prematur
Rizkinaswara, L. (2019). Dampak Penggunaan Internet Indonesia Terhadap Sosial Budaya Masyarakat. Aptika Kominfo RI. https://aptika.kominfo.go.id/2019/08/dampak-penggunaan-internet-indonesia-terhadap-sosial-budaya-masyarakat/
Sari, D. N., & Basit, A. (2020). Media Sosial Instagram Sebagai Media Informasi Edukasi. Persepsi: Communication Journal, 3(1), 23–36. https://doi.org/10.30596/persepsi.v3i1.4428
Saw, T. C., Mohamad, E., & Mohamed Salleh, S. (2021). Acceptance of Health Messages Conveyed by Parasocial Opinion Leaders on Twitter among Followers. Jurnal Komunikasi: Malaysian Journal of Communication, 37(4), 104–121. https://doi.org/10.17576/JKMJC-2021-3704-07
Siswanto, J. E., Bos, A. F., Dijk, P. H., Rohsiswatmo, R., Irawan, G., Sulistijono, E., Sianturi, P., Wisnumurti, D. A., Wilar, R., & Sauer, P. J. J. (2021). Multicentre survey of retinopathy of prematurity in Indonesia. BMJ Paediatrics Open, 5(1), e000761. https://doi.org/10.1136/bmjpo-2020-000761
Somers, A. R. (1976). Promoting health: consumer, education and national policy. Aspen Systems.
Tah, V., Sharif, W., Yusuf, I., Posner, M., Ramskold, L., Tariq, F., Mukhey, D., & Sharif, Z. (2014). Retinopathy of Prematurity. In Ophthalmology - Current Clinical and Research Updates. InTech. https://doi.org/10.5772/58585
World Health Organization and the International Agency for the Prevention of Blindness Joint Initiative. (2012). Vision 2020: Global initiative for the elimination of avoidable blindness: action plan 2006-2011.
Wulantari, A., & Rahmayanti, Y. (2019). Gambaran Pengguna Media Sosial Facebook Dan Instagram Dalam Promosi Kesehatan Bahaya Merokok bahwa lebih dari separuh orang dewasa. 1(2), 47–55.
Afrilia, A. M. (2017). Penggunaan New Media Di Kalangan Ibu Muda Sebagai Media Parenting Masa Kini. Jurnal Komunikasi Dan Kajian Media, 1(1), 31–42.
Ayu, A. P. (2019). 4 Fakta tentang Permasalahan Skrining Prematuritas. https://www.facebook.com/photo.php?fbid=10218388924221675&set=gm.3140420796183413&type=3
Blencowe, H., Cousens, S., Oestergaard, M. Z., Chou, D., Moller, A. B., Narwal, R., Adler, A., Vera Garcia, C., Rohde, S., Say, L., & Lawn, J. E. (2012). National, regional, and worldwide estimates of preterm birth rates in the year 2010 with time trends since 1990 for selected countries: A systematic analysis and implications. The Lancet, 379(9832), 2162–2172. https://doi.org/10.1016/S0140-6736(12)60820-4
Cassata, D. M. (1980). Health Communication Theory and Research: A Definitional Overview. Annals of the International Communication Association, 4(1), 583–589. https://doi.org/10.1080/23808985.1980.11923826
Chawanpaiboon, S., Vogel, J. P., Moller, A. B., Lumbiganon, P., Petzold, M., Hogan, D., Landoulsi, S., Jampathong, N., Kongwattanakul, K., Laopaiboon, M., Lewis, C., Rattanakanokchai, S., Teng, D. N., Thinkhamrop, J., Watananirun, K., Zhang, J., Zhou, W., & Gülmezoglu, A. M. (2019). Global, regional, and national estimates of levels of preterm birth in 2014: a systematic review and modelling analysis. The Lancet Global Health, 7(1), e37–e46. https://doi.org/10.1016/S2214-109X(18)30451-0
Clinic, M. (2021). Premature Birth (Vol. 148). https://www.mayoclinic.org/diseases-conditions/premature-birth/symptoms-causes/syc-20376730
Dewi, R., Tuhusula, R., & Rohsiswatmo, R. (2016). Skrining Retinopathy of Prematuritydi Rumah Sakit dengan Fasilitas Terbatas. Sari Pediatri, 14(3), 185. https://doi.org/10.14238/sp14.3.2012.185-90
Haslam, D. M., Tee, A., & Baker, S. (2017). The Use of Social Media as a Mechanism of Social Support in Parents. Journal of Child and Family Studies, 26(7), 2026–2037. https://doi.org/10.1007/s10826-017-0716-6
Katoch, D., & Dogra, M. (2018). The role of advocacy and communication in reducing ROP in India. Community Eye Health, 31(101), S32–S34. http://www.ncbi.nlm.nih.gov/pubmed/30275669%0Ahttp://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=PMC6157802
Kemenkes RI. (2019). Profil Kesehatan Indonesia 2018 [Indonesia Health Profile 2018]. http://www.depkes.go.id/resources/download/pusdatin/profil-kesehatan-indonesia/Data-dan-Informasi_Profil-Kesehatan-Indonesia-2018.pdf
Kemp, S. (2020). Digital 2020: Indonesia. Data Reportal. https://datareportal.com/reports/digital-2020-indonesia
Kinanti, R., Kassa, M., Vidyarini, T. N., & Monica, V. (2020). Pesan Komunikasi Kesehatan pada Posting Instagram Alodokter dan Halodoc. Jurnal E-Komunikasi, 8(2), 1–10.
Lynn-Sze, J. C., & Kamaruddin, A. (2021). Online Opinion Leaders in the Health Promotion Digital Era. Jurnal Komunikasi: Malaysian Journal of Communication, 37(4), 295–309. https://doi.org/10.17576/JKMJC-2021-3704-17
Malik, A., Khan, M. L., & Quan-Haase, A. (2021). Public health agencies outreach through Instagram during the COVID-19 pandemic: Crisis and Emergency Risk Communication perspective. International Journal of Disaster Risk Reduction, 61(May), 102346. https://doi.org/10.1016/j.ijdrr.2021.102346
Mariyana, R. (2018). Riwayat Prematur dengan Tumbuh Kembang Anak Usia Satu Tahun. Human Care Journal, 3(3), 183. https://doi.org/10.32883/hcj.v3i3.217
Miller-Ott, A. E., & Durham, W. T. (2011). The Role of Social Support in Young Women’s Communication About the Genital HPV Vaccine. Women’s Studies in Communication, 34(2), 183–201. https://doi.org/10.1080/07491409.2011.618239
Miyane, W. T., & Mansur, S. (2021). Health Communication Campaign of Clean and Healthy Living Behaviour (PHBS) in Covid-19 Pandemic Era. Jurnal Komunikasi: Malaysian Journal of Communication, 37(2), 305–322. https://doi.org/10.17576/JKMJC-2021-3702-19
Mulyana, D. (2008). Ilmu Komunikasi Suatu Pengantar. PT Remaja Rosdakarya.
Notoatmodjo, S. (2010). Promosi Kesehatan Teori & Aplikasi. PT. Rineka Cipta.
Nugroho, A. (2018). Mengenal Komunitas Premature Indonesia: Edukasi supaya Ortu Tak Cemas. Radar Kediri. https://radarkediri.jawapos.com/read/2018/09/23/96385/mengenal-komunitas-premature-indonesia
Paramasari, S. N., & Nugroho, A. (2021). Strategi Komunikasi Kesehatan dalam Upaya Membangun Partisipasi Publik pada Masa Pandemi Covid-19. JURNAL LENSA MUTIARA KOMUNIKASI, 5(1), 123–132. https://doi.org/10.51544/jlmk.v5i1.2036
Parsons, C. S. (2019). Hystersisters : messages of social support in an online health support group for women. Journal of Communication in Healthcare, 12(2), 121–133. https://doi.org/10.1080/17538068.2019.1612211
Patel, S., Shafer, A., Brown, J., Bulik, C., & Zucker, N. (2014). Parents of Children With Eating Disorders: Developing Theory-Based Health Communication Messages to Promote Caregiver Well-Being. Journal of Health Communication, 19(5), 593–608. https://doi.org/10.1080/10810730.2013.821559
Rahmadiana, M. (2012). Komunikasi Kesehatan : Sebuah Tinjauan*. Jurnal Psikogenesis, 1(1), 88–94.
Rahmawati, W. R. (2018). Penerimaan Masyarakat Terhadap Pesan Kesehatan Melalui Media Internet. Jurnal Komunikatif, 7(1), 95–105. https://doi.org/10.33508/jk.v7i1.1748
Rakhmaniar, A. (2021). Strategi Komunikasi Kesehatan Penanganan Covid-19. Linimasa: Jurnal Ilmu Komunikasi, 4(1), 10–30. https://doi.org/http://dx.doi.org/10.23969/linimasa.v4i1.3496
Rakhmat, J. (2018). Psikologi Komunikasi Edisi Revisi. PT. Remaja Rosdakarya.
Rasmi, L. (2021). Belum banyak dokter Indonesia yang bisa tangani kelainan mata anak prematur. Akurat. https://akurat.co/id-87277-read-belum-banyak-dokter-indonesia-yang-bisa-tangani-kelainan-mata-anak-prematur
Rizkinaswara, L. (2019). Dampak Penggunaan Internet Indonesia Terhadap Sosial Budaya Masyarakat. Aptika Kominfo RI. https://aptika.kominfo.go.id/2019/08/dampak-penggunaan-internet-indonesia-terhadap-sosial-budaya-masyarakat/
Sari, D. N., & Basit, A. (2020). Media Sosial Instagram Sebagai Media Informasi Edukasi. Persepsi: Communication Journal, 3(1), 23–36. https://doi.org/10.30596/persepsi.v3i1.4428
Saw, T. C., Mohamad, E., & Mohamed Salleh, S. (2021). Acceptance of Health Messages Conveyed by Parasocial Opinion Leaders on Twitter among Followers. Jurnal Komunikasi: Malaysian Journal of Communication, 37(4), 104–121. https://doi.org/10.17576/JKMJC-2021-3704-07
Siswanto, J. E., Bos, A. F., Dijk, P. H., Rohsiswatmo, R., Irawan, G., Sulistijono, E., Sianturi, P., Wisnumurti, D. A., Wilar, R., & Sauer, P. J. J. (2021). Multicentre survey of retinopathy of prematurity in Indonesia. BMJ Paediatrics Open, 5(1), e000761. https://doi.org/10.1136/bmjpo-2020-000761
Somers, A. R. (1976). Promoting health: consumer, education and national policy. Aspen Systems.
Tah, V., Sharif, W., Yusuf, I., Posner, M., Ramskold, L., Tariq, F., Mukhey, D., & Sharif, Z. (2014). Retinopathy of Prematurity. In Ophthalmology - Current Clinical and Research Updates. InTech. https://doi.org/10.5772/58585
World Health Organization and the International Agency for the Prevention of Blindness Joint Initiative. (2012). Vision 2020: Global initiative for the elimination of avoidable blindness: action plan 2006-2011.
Wulantari, A., & Rahmayanti, Y. (2019). Gambaran Pengguna Media Sosial Facebook Dan Instagram Dalam Promosi Kesehatan Bahaya Merokok bahwa lebih dari separuh orang dewasa. 1(2), 47–55.
Published
2023-06-27
How to Cite
Suteja, R. S. A., Umar, U., Nimas Safira Widhiasti, W., Dimas, R., & Angga Prawadika, A. (2023). Premature Indonesia Support Group in Health Communication: Efforts to Prevent Retinopathy of Prematurity in Indonesia. Jurnal Komunikasi Profesional, 7(3), 427 - 439. https://doi.org/10.25139/jkp.v7i3.6027
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