Exploring participatory culture among persons with disability: a case study on #stopaudism

  • Ikrima Nurfikria Universitas Indonesia
Abstract views: 470 , PDF downloads: 59
Keywords: Personswithdisabilities, hashtagactivism, deaf, participatoryculture

Abstract

Abstract This study examines the participatory culture of persons with disabilities in Indonesia by analysing their engagement in hashtag activism on Instagram. The selected hashtag, #stopaudism, gained prominence in response to an incident involving the Minister of Social Affairs, Tri Rismaharini, who compelled Deaf persons to speak during an event commemorating the National Day of Disabilities on 1 December 2021. This research employs a mixed-method approach, combining web scraping techniques with thematic analysis, and draws upon Henry Jenkins's participatory culture theory to analyse Instagram posts featuring the #stopaudism hashtag by persons with disabilities. The web scraping techniques successfully tracked trends in the #stopaudism hashtag, revealing a notable surge on December 2nd and 3rd, 2021, and highlighted posts with the highest likes and comments. Thematic analysis unveiled six strategies employed by persons with disabilities on Instagram to participate actively in hashtag activism: education, self-disclosure, declaration of hashtag activism, expression of anger or disappointment, presentation of evidence/media coverage, and invitations to sign petitions.

References

Alathur, S and Pai, R.R. (2023), Usefulness and barriers of adoption of social media for disability services: An empirical analysis", Transforming Government: People, Process and Policy, Vol. 17 No.1, pp. 147-171

Alcoff, L. (1991). The Problem of Speaking for Others. Cultural Critique, 20. https://doi.org/10.2307/1354221

Barassi, V. (2018). Social media activism, self-representation and the construction of political biographies. In The Routledge Companion To Media And Activism. https://doi.org/10.4324/9781315475059-15

Barlott, T., Aplin, T., Catchpole, E., Kranz, R., le Goullon, D., Toivanen, A., & Hutchens, S. (2020). Connectedness and ICT: Opening the door to possibilities for people with intellectual disabilities. Journal of Intellectual Disabilities, 24(4). https://doi.org/10.1177/1744629519831566

Bauman, H. D. L. (2004). Audism: exploring the metaphysics of oppression. Journal of Deaf Studies and Deaf Education, 9(2). https://doi.org/10.1093/deafed/enh025

Bitman, N. (2021). 'Which part of my group do I represent?': disability activism and social media users with concealable communicative disabilities. Information Communication and Society. https://doi.org/10.1080/1369118X.2021.1963463

Braun, V., & Clarke, V. (2013). "Thematic analysis". In Handbook of Research Methods in Health Social Sciences, Ed. Pranee Liamputtong. Hoboken, NJ Springer.

Bruns, A., & Burgess, J. (2012). Researching news discussion on twitter. Journalism Studies, 13(5–6). https://doi.org/10.1080/1461670x.2012.664428

Cahyadi, A., & Setiawan, A. (2020). Disability and social media: exploring utilisation of instagram platform as a tool for disability advocacy. Al-Balagh : Jurnal Dakwah Dan Komunikasi, 5(2). https://doi.org/10.22515/al-balagh.v5i2.2746

Carley, K. M., Malik, M., Kowalchuck, M., Pfeffer, J., & Landwehr, P. (2018). Twitter Usage in Indonesia. SSRN Electronic Journal. https://doi.org/10.2139/ssrn.2720332

Chusna, Aidatul. (2021). Gerakan #Dirumahaja sebagai Aktivisme Digital pada Akun Media Sosial Najwa Shihab. Kamboti, Vol. 1, No. 2, 29 Apr , 1(2), 124–132.

Crystal Pereira, R., & Vanitha, T. (2015). Web Scraping of Social Networks. International Journal of Innovative Research in Computer and Communication Engineering (An ISO, 3297(7).

Eckert, R. C., & Rowley, A. J. (2013). Audism: A Theory and Practice of Audiocentric Privilege. Humanity & Society, 37(2).

Ellis, K., & Goggin, G. (2015). Disability and the Media. In Disability and the Media. Macmillan Education UK. https://doi.org/10.1007/978-1-137-50171-4

Ellis, K., & Kent, M. (2016). Disability and social media: Global perspectives. In Disability and Social Media: Global Perspectives. https://doi.org/10.4324/9781315577357

Ellis, Katie; Goggin, G. (2018). Disability and media activism. In The Routledge Companion To Media And Activism.

Eriyanto, E. (2020). Hashtags and Digital Movement of Opinion Mobilization: A Social Network Analysis/SNA Study on #BubarkanKPAI vs #KamiBersamaKPAI Hashtags. Jurnal Komunikasi Indonesia, 8(3). https://doi.org/10.7454/jki.v8i3.11591

Fatmasari, Kunang, Y. N., & Purnamasari, S. D. (2019). Web Scraping Techniques to Collect Weather Data in South Sumatra. Proceedings of 2018 International Conference on Electrical Engineering and Computer Science, ICECOS 2018. https://doi.org/10.1109/ICECOS.2018.8605202

Fuchs, C., & Mosco, V. (2015). Marx in the Cloud. In Marx in the Age of Digital Capitalism. https://doi.org/10.1163/9789004291393_017

Gerbaudo, P. (2012). Tweets and the Streets: Social Media and Contemporary Activism. In PlutoPress.

Harris, S., Owen, R., & de Ruiter, C. (2012). Civic Engagement and People with Disabilities: The Role of Advocacy and Technology. Journal of Community Engagement and Scholarship, 5(1). https://doi.org/10.54656/awpe1856

Hastuti, Dewi, K. R., Pramana, P. R., & Sadaly, H. (2020). Kendala Mewujudkan Pembangunan Inklusif Penyandang Disabilitas. .

Tessa Hens & Kim Frances Dunphy (2022) Developing participants' capacity for reflection and self-assessment in a dance movement therapy program for people with intellectual disability, Disability & Society, 37:2, 271-295.

Himawan, A., Priadana, A., & Murdiyanto, A. (2020). Implementation of Web Scraping to Build a Web-Based Instagram Account Data Downloader Application. IJID (International Journal on Informatics for Development), 9(2). https://doi.org/10.14421/ijid.2020.09201

Ineland, J., Gelfgren, S., & Cocq, C. (2019). Negotiating authority: Disability, interactions and power relations on Twitter. Scandinavian Journal of Disability Research, 21(1). https://doi.org/10.16993/sjdr.591

Jenkins, H. (2006). Convergence Culture Where Old and New Media Collide. NYU Press.

Jenkins, H., Clinton, K., Purushotma, R., Robison, A. J., & Weigel, M. (2009). Confronting the Challenges of Participatory Culture : Media Education for the 21 Century. In MacArthur (Vol. 21, Issue 1).

Joffe, H., & Yardley, L. (2004). Content and Thematic. In Research Methods for Clinical and Health Psychology.

Kaun, A., & Uldam, J. (2018). Digital activism: After the hype. In New Media and Society (Vol. 20, Issue 6). https://doi.org/10.1177/1461444817731924

Kim, Y., Song, D., & Lee, Y. J. (2020). #Antivaccination on Instagram: A computational analysis of hashtag activism through photos and public responses. International Journal of Environmental Research and Public Health, 17(20). https://doi.org/10.3390/ijerph17207550

Laucuka, A. (2018). Communicative Functions of Hashtags. Economics and Culture, 15(1). https://doi.org/10.2478/jec-2018-0006

Li, H., & Brady, E. (2016). Accessibilityfail: Categorizing shared photographs of physical accessibility problems. ASSETS 2016 - Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility. https://doi.org/10.1145/2982142.2982186

Liao, S. (2019). "#IAmGay# what about you?": Storytelling, discursive politics, and the affective dimension of social media activism against censorship in China. International Journal of Communication, 13.

Livingstone, S., & Markham, T. (2008). Mediating public participation: On the political significance of everyday media consumption. British Journal of Sociology, 59(2).

Löfgren-Mårtenson, L. (2008). Love in Cyberspace: Swedish Young People with Intellectual Disabilities and the Internet1. Scandinavian Journal of Disability Research, 10(2). https://doi.org/10.1080/15017410701758005

Lussier-Desrochers, D., Normand, C. L., Romero-Torres, A., Lachapelle, Y., Godin-Tremblay, V., Dupont, M. È., Roux, J., Pépin-Beauchesne, L., & Bilodeau, P. (2017). Bridging the digital divide for people with intellectual disability. Cyberpsychology, 11(1Special Issue). https://doi.org/10.5817/CP2017-1-1

Mann, B. W. (2018). Rhetoric of online disability activism: #CripTheVote and civic participation. Communication, Culture and Critique, 11(4). https://doi.org/10.1093/ccc/tcy030

Mayfield, R. (2005). Social Network Dynamics and Participatory Politics. Extreme Democracy.

McGregor, S. (2021). Book Review: #HashtagActivism: Networks of Race and Gender Justice by Sarah J. Jackson, Moya Bailey, and Brooke Foucault Welles. The International Journal of Press/Politics, 26(3). https://doi.org/10.1177/1940161221993073

McMorrine, J. (2017). Digital participation amongst people with disabilities: Barriers that need to be overcome to increase digital participation.

Nuswantara, G. N. (2019). Visualisasi Tagar Dalam Media Ssosial Instagram (Analisis Wacana Kritis Model Norman Fairclough). Jurnal Dekave, 12(2), 21–34.

Pearson, C., & Trevisan, F. (2015). Disability activism in the new media ecology: campaigning strategies in the digital era. Disability and Society, 30(6). https://doi.org/10.1080/09687599.2015.1051516

Priadana, A., & Murdiyanto, A. W. (2020). Instagram Hashtag Trend Monitoring Using Web Scraping. Journal Pekommas, 5(1). https://doi.org/10.30818/jpkm.2020.2050103

Rainie, L., & Wellman, B. (2018). The New Social Operating System of Networked Individualism. In Networked.

Vereenooghe, L. (2021). Participation of people with disabilities in web-based research.Zeitschrift für Psychologie, 229(4), 257–259. https://doi.org/10.1027/2151-2604/a000472

Vivienne, S. (2016). Digital Identity and Everyday Activism. In Digital Identity and Everyday Activism. https://doi.org/10.1057/9781137500748

Published
2023-11-29
How to Cite
Nurfikria, I. (2023). Exploring participatory culture among persons with disability: a case study on #stopaudism. Jurnal Studi Komunikasi, 7(3), 813 - 836. https://doi.org/10.25139/jsk.v7i3.5870
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Articles