Being survivors: therapeutic communication for people living with HIV/AIDS (plwha)
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Keywords:
survivors, therapeutic communication, HIV/AIDS patient
Abstract
The number of People Living With HIV/AIDS (PLWHA) is steadily increasing. HIV/AIDS is caused by a virus that infects the body and weakens the immune system, making it difficult to fight germs, viruses, fungi, and other pathogens. HIV and AIDS are still considered taboo diseases that should not be openly discussed. People living with HIV/AIDS (PLWHA) are discouraged from seeking treatment due to stigma and discrimination. Eliminating stigma and discrimination against people living with HIV/AIDS will improve the process of preventing and overcoming HIV/AIDS cases. In addition, therapeutic communication also affects interpersonal relationships. This research aims to figure out how the therapeutic communication efforts of People living with HIV/AIDS (PLWHA) become survivors. The method used in this research is phenomenology, where the informants in this study are people with HIV/AIDS who live in Surabaya. This study concludes that therapeutic communication efforts to People living with HIV/AIDS (PLWHA) are by presenting volunteers who help people living with HIV/AIDS (PLWHA) based on the same fate as People living with HIV/AIDS (PLWHA). The presence of volunteers (PLWHA) assists and bridges the gap between patients and therapy, fostering a sense of comfort for PLWHA. They also make other patients feel more at ease while they are receiving treatment in the hospital.
References
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Carcone, A., Naar, S., Clark, J., MacDonell, K., & Zhang, L. (2020). Provider behaviors that predict motivational statements in adolescents and young adults with HIV: a study of clinical communication using the Motivational Interviewing framework. AIDS Care, 32(9), 1069–1077.
Carsita, W., Winarni, I., & Lestari, R. (2016). Studi Fenomenologi: Orang Dengan Hiv Aids (Odha) Dalam Menjalani Self-Disclosure Di Wilayah Kerja Puskesmas Bongas. Jurnal Ilmu Keperawatan: Journal of Nursing Science, 4(2), 205–224.
Chimbwete-Phiri, R., & Schnurr, S. (2020). Improving HIV/AIDS consultations in Malawi: How interactional sociolinguistics can contribute. Applying Linguistics in Illness and Healthcare Contexts.
Creswell, J., & Poth, C. (2017). Qualitative inquiry and research design: Choosing among five approaches. California: Sage publications.
Croston, M., & Gibson, S. (2020). Navigating stormy waters: Difficult conversations in HIV care. In Psychological Perspectives in HIV Care (pp. 80–94). Routledge.
Dahlui, M., Azahar, N., Bulgiba, A., Zaki, R., Oche, O., Adekunjo, F., & Chinna, K. (2015). HIV/AIDS related stigma and discrimination against PLWHA in Nigerian population. PloS One, 10(12), e0143749.
Edwards, L., Donovan-Kicken, E., & Reis, J. (2014). Communicating in complex situations: A normative approach to HIV-related talk among parents who are HIV+. Health Communication, 29(4), 364–374.
Ferguson, C. (2020). Therapeutic Communication Skills for Nurses Working with People Living with HIV. Walden University.
Hasanah, A. (2020). Sebanyak 7.105 ODHA Baru di Jatim, Surabaya Terbanyak. https://rri.co.id/daerah/770437/sebanyak-7-105-odha-baru-di-jatim-surabaya-terbanyak
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Kemenkes. (2016). Laporan Situasi Perkembangan HIV & AIDS di Indonesia Tahun 2015.
Khan, S. (2020). Examining HIV/AIDS-Related Stigma at Play: Power, Structure, and Implications for HIV Interventions. Health Communication, 35(12), 1509–1519. https://doi.org/10.1080/10410236.2019.1652386
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Latifah, D., & Mulyana, N. (2017). Peran pendamping bagi orang dengan HIV/AIDS (ODHA). Prosiding Penelitian Dan Pengabdian Kepada Masyarakat, 2(3).
Lestari, H. (2016). Stigma dan Diskriminasi ODHA di Kabupaten Madiun. Tunas-Tunas Riset Kesehatan, 6(3).
Liputan6. (2021). Penyebab HIV AIDS, Gejala, Pengobatan dan Cara Mencegahnya yang Perlu Diketahui. https://id.berita.yahoo.com/penyebab-hiv-aids-gejala-pengobatan-040016423.html
Miles, M., & Huberman, A. (1994). An expanded sourcebook: Qualitative data analysis (2nd Edition). In Sage Publications. https://doi.org/10.1016/0149-7189(96)88232-2
Minanton, & Dewi, A. (2019). Komunikasi Terapeutik Dalam Pelayanan Kanker Dan Paliatif. Citra Delima : Jurnal Ilmiah STIKES Citra Delima Bangka Belitung, 3(1). https://doi.org/10.33862/citradelima.v3i2.47
Neubaum, G., & Krämer, N. (2015). Let's Blog About Health! Exploring the Persuasiveness of a Personal HIV Blog Compared to an Institutional HIV Website. Health Communication, 30(9), 872–883. https://doi.org/10.1080/10410236.2013.856742
Ogunsola, S. (2020). Pattern of HIV/AIDS Message Communication Between Health Workers and Residents of Oke-Ogun Area of Oyo State, Nigeria. Kwara State University (Nigeria).
Pardita, D., & Sudibia, I. (2014). Analisis dampak sosial, ekonomi, dan psikologis penderita hiv aids di Kota denpasar. Buletin Studi Ekonomi, 19(2), 193–199.
Pratiwi, A., Wahyuningsih, T., & Safitri, S. (2021). The effect of communication between therapeutic nurses and patients on pre-surgical anxiety levels. Enfermería Clínica, 31, S439–S442.
Rustan, E., & Hasriani. (2020). Communication pattern between nurses and elderly patients through a neuro-linguistic programming approach. Jurnal Studi Komunikasi (Indonesian Journal of Communications Studies), 4(1). https://doi.org/10.25139/jsk.v4i1.2180
Shaluhiyah, Z., Musthofa, S., & Widjanarko, B. (2015). Stigma Masyarakat terhadap Orang dengan HIV/AIDS. Kesmas: National Public Health Journal, 9(4). https://doi.org/10.21109/kesmas.v9i4.740
Sharma, N., & Gupta, V. (2021). Therapeutic Communication. StatPearls [Internet].
Simanjuntak, G., Saragih, M., Hasibuan, E., & Pardede, J. (2020). Stop Stigma Dan Diskriminasi ODHA di Kota Medan. Jurnal Abdimas Mutiara, 1(1), 24–29.
Sofia, R. (2018). Stigma Dan Diskriminasi Terhadap ODHA (Studi Pada Tenaga Kesehatan Di Puskesmas Tanah Pasir Aceh Utara). AVERROUS: Jurnal Kedokteran Dan Kesehatan Malikussaleh, 2(1), 79–89.
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Stuart, G., & Laraia, M. (2005). Principles and Practice Psychiatric Nursing ed.8. London: Elsevier Mosby.
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Suwandi, B. (2008). Memahami Penelitian Kualitatif. Jakarta: PT Reneka Cipta.
Taunton, R., Bott, M., Koehn, M., Miller, P., Rindner, E., Pace, K., Elliott, C., Bradley, K., Boyle, D., & Dunton, N. (2004). The NDNQI-Adapted Index of Work Satisfaction. Journal of Nursing Measurement, 12(2). https://doi.org/10.1891/106137404780954678
Ventrakatraman, K., & Manoharan, A. (2021). Public Engagement as the Fifth Dimension of Outbreak Communication: Public's Perceptions of Public Health Communication during COVID-19 in India. Health Communication, 1–13. https://doi.org/10.1080/10410236.2021.1950294
Waluyo, A., Mansyur, M., Earnshaw, V., Steffen, A., Herawati, T., Maria, R., & Culbert, G. (2021). Exploring HIV stigma among future healthcare providers in Indonesia. AIDS Care, 1–10.
Ardani, I., & Handayani, S. (2017). Stigma terhadap Orang dengan HIV/AIDS (ODHA) sebagai Hambatan Pencarian Pengobatan: Studi Kasus pada Pecandu Narkoba Suntik di Jakarta. Buletin Penelitian Kesehatan, 45(2), 81–88. https://doi.org/10.22435/bpk.v45i2.6042.81-88
Bekalu, M., & Eggermont, S. (2013). Determinants of HIV/AIDS-Related Information Needs and Media Use: Beyond Individual-Level Factors. Health Communication, 28(6), 624–636. https://doi.org/10.1080/10410236.2012.717050
Borrell-Carrió, F., Suchman, A., & Epstein, R. (2004). The biopsychosocial model 25 years later: principles, practice, and scientific inquiry. The Annals of Family Medicine, 2(6), 576–582.
Bowleg, L., Valera, P., Teti, M., & Tschann, J. (2010). Silences, Gestures, and Words: Nonverbal and Verbal Communication About HIV/AIDS and Condom Use in Black Heterosexual Relationships. Health Communication, 25(1), 80–90. https://doi.org/10.1080/10410230903474019
Carcone, A., Naar, S., Clark, J., MacDonell, K., & Zhang, L. (2020). Provider behaviors that predict motivational statements in adolescents and young adults with HIV: a study of clinical communication using the Motivational Interviewing framework. AIDS Care, 32(9), 1069–1077.
Carsita, W., Winarni, I., & Lestari, R. (2016). Studi Fenomenologi: Orang Dengan Hiv Aids (Odha) Dalam Menjalani Self-Disclosure Di Wilayah Kerja Puskesmas Bongas. Jurnal Ilmu Keperawatan: Journal of Nursing Science, 4(2), 205–224.
Chimbwete-Phiri, R., & Schnurr, S. (2020). Improving HIV/AIDS consultations in Malawi: How interactional sociolinguistics can contribute. Applying Linguistics in Illness and Healthcare Contexts.
Creswell, J., & Poth, C. (2017). Qualitative inquiry and research design: Choosing among five approaches. California: Sage publications.
Croston, M., & Gibson, S. (2020). Navigating stormy waters: Difficult conversations in HIV care. In Psychological Perspectives in HIV Care (pp. 80–94). Routledge.
Dahlui, M., Azahar, N., Bulgiba, A., Zaki, R., Oche, O., Adekunjo, F., & Chinna, K. (2015). HIV/AIDS related stigma and discrimination against PLWHA in Nigerian population. PloS One, 10(12), e0143749.
Edwards, L., Donovan-Kicken, E., & Reis, J. (2014). Communicating in complex situations: A normative approach to HIV-related talk among parents who are HIV+. Health Communication, 29(4), 364–374.
Ferguson, C. (2020). Therapeutic Communication Skills for Nurses Working with People Living with HIV. Walden University.
Hasanah, A. (2020). Sebanyak 7.105 ODHA Baru di Jatim, Surabaya Terbanyak. https://rri.co.id/daerah/770437/sebanyak-7-105-odha-baru-di-jatim-surabaya-terbanyak
Hou, J., Wu, Y., Xie, L., Meng, S., Fu, R., Zheng, H., He, N., Huang, X., Xu, J., & Meyers, K. (2020). Post-exposure prophylaxis: an underutilised biomedical HIV prevention method among gay, bisexual and other men who have sex with men in China. AIDS Care, 32(12), 1573–1580.
Huda, J. M., Prasetyo, I. J., & Fitriyah, I. (2019). Komunikasi Interpersonal Antar ODHA untuk Menumbuhkan Motivasi Kembali Hidup Normal di Yayasan Mahameru Surabaya. Jurnal Komunikasi Profesional. https://doi.org/10.25139/jkp.v3i1.1700
Husserl, E. (2014). Ideas: General introduction to pure phenomenology. Routledge. https://doi.org/10.4324/9781315823577
Jackman, K., Murray, S., Hightow-Weidman, L., Trent, M., Wirtz, A., Baral, S., & Jennings, J. (2020). Digital technology to address HIV and other sexually transmitted infection disparities: Intentions to disclose online personal health records to sex partners among students at a historically Black college. PloS one, 15(8), e0237648. PloS One, 15(8).
Kemenkes. (2016). Laporan Situasi Perkembangan HIV & AIDS di Indonesia Tahun 2015.
Khan, S. (2020). Examining HIV/AIDS-Related Stigma at Play: Power, Structure, and Implications for HIV Interventions. Health Communication, 35(12), 1509–1519. https://doi.org/10.1080/10410236.2019.1652386
Komisi-Penanggulangan-AIDS. (2011). Strategi penanggulangan HIV/AIDS. http://www.aidsindonesia.or.id/dasar-hiv-aids
Krishna, A., & Thompson, T. (2021). Misinformation about health: a review of health communication and misinformation scholarship. American Behavioral Scientist, 65(2), 316–332.
Latifah, D., & Mulyana, N. (2017). Peran pendamping bagi orang dengan HIV/AIDS (ODHA). Prosiding Penelitian Dan Pengabdian Kepada Masyarakat, 2(3).
Lestari, H. (2016). Stigma dan Diskriminasi ODHA di Kabupaten Madiun. Tunas-Tunas Riset Kesehatan, 6(3).
Liputan6. (2021). Penyebab HIV AIDS, Gejala, Pengobatan dan Cara Mencegahnya yang Perlu Diketahui. https://id.berita.yahoo.com/penyebab-hiv-aids-gejala-pengobatan-040016423.html
Miles, M., & Huberman, A. (1994). An expanded sourcebook: Qualitative data analysis (2nd Edition). In Sage Publications. https://doi.org/10.1016/0149-7189(96)88232-2
Minanton, & Dewi, A. (2019). Komunikasi Terapeutik Dalam Pelayanan Kanker Dan Paliatif. Citra Delima : Jurnal Ilmiah STIKES Citra Delima Bangka Belitung, 3(1). https://doi.org/10.33862/citradelima.v3i2.47
Neubaum, G., & Krämer, N. (2015). Let's Blog About Health! Exploring the Persuasiveness of a Personal HIV Blog Compared to an Institutional HIV Website. Health Communication, 30(9), 872–883. https://doi.org/10.1080/10410236.2013.856742
Ogunsola, S. (2020). Pattern of HIV/AIDS Message Communication Between Health Workers and Residents of Oke-Ogun Area of Oyo State, Nigeria. Kwara State University (Nigeria).
Pardita, D., & Sudibia, I. (2014). Analisis dampak sosial, ekonomi, dan psikologis penderita hiv aids di Kota denpasar. Buletin Studi Ekonomi, 19(2), 193–199.
Pratiwi, A., Wahyuningsih, T., & Safitri, S. (2021). The effect of communication between therapeutic nurses and patients on pre-surgical anxiety levels. Enfermería Clínica, 31, S439–S442.
Rustan, E., & Hasriani. (2020). Communication pattern between nurses and elderly patients through a neuro-linguistic programming approach. Jurnal Studi Komunikasi (Indonesian Journal of Communications Studies), 4(1). https://doi.org/10.25139/jsk.v4i1.2180
Shaluhiyah, Z., Musthofa, S., & Widjanarko, B. (2015). Stigma Masyarakat terhadap Orang dengan HIV/AIDS. Kesmas: National Public Health Journal, 9(4). https://doi.org/10.21109/kesmas.v9i4.740
Sharma, N., & Gupta, V. (2021). Therapeutic Communication. StatPearls [Internet].
Simanjuntak, G., Saragih, M., Hasibuan, E., & Pardede, J. (2020). Stop Stigma Dan Diskriminasi ODHA di Kota Medan. Jurnal Abdimas Mutiara, 1(1), 24–29.
Sofia, R. (2018). Stigma Dan Diskriminasi Terhadap ODHA (Studi Pada Tenaga Kesehatan Di Puskesmas Tanah Pasir Aceh Utara). AVERROUS: Jurnal Kedokteran Dan Kesehatan Malikussaleh, 2(1), 79–89.
Stuart, G. (1991). Pocket guide to psychiatric nursing. Mosby.
Stuart, G., & Laraia, M. (2005). Principles and Practice Psychiatric Nursing ed.8. London: Elsevier Mosby.
Supriyanto, S., & Ernawaty. (2010). Pemasaran Industri Jasa Kesehatan. Yogyakarta: CV. Andi Offset.
Suwandi, B. (2008). Memahami Penelitian Kualitatif. Jakarta: PT Reneka Cipta.
Taunton, R., Bott, M., Koehn, M., Miller, P., Rindner, E., Pace, K., Elliott, C., Bradley, K., Boyle, D., & Dunton, N. (2004). The NDNQI-Adapted Index of Work Satisfaction. Journal of Nursing Measurement, 12(2). https://doi.org/10.1891/106137404780954678
Ventrakatraman, K., & Manoharan, A. (2021). Public Engagement as the Fifth Dimension of Outbreak Communication: Public's Perceptions of Public Health Communication during COVID-19 in India. Health Communication, 1–13. https://doi.org/10.1080/10410236.2021.1950294
Waluyo, A., Mansyur, M., Earnshaw, V., Steffen, A., Herawati, T., Maria, R., & Culbert, G. (2021). Exploring HIV stigma among future healthcare providers in Indonesia. AIDS Care, 1–10.
Published
2021-11-20
How to Cite
Effendy, C., de Vera, R. V. M., Asfar, D. A., Syahrani, A., & GS, A. D. (2021). Being survivors: therapeutic communication for people living with HIV/AIDS (plwha). Jurnal Studi Komunikasi, 5(3), 584-599. Retrieved from https://ejournal.unitomo.ac.id/index.php/jsk/article/view/4412
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